A Wave



It’s amazing how much we take for granted in our lives and then when it’s too late we lamente and feel guilty for not doing more or not making more time, but it’s too late. No tomorrow is promised so I’m living everyday and sharing my time and life  with friends and family as best I can.

I’ve learned so much in the last four years about who I am. I’ve learned to be patient, compassionate, selfless and very vocal about what I feel.  I am not afraid to stand up for my family or tell the people in my life how much I love them. One of the most valuable lessons I have learned is how precious and priceless a single moment can be. I’ve learned to savor each breath, new accomplishment and laugh, to feel it and appreciate all the those moments bring with them.

I remember when Sophie turned one how I wished that she would wave hello and goodbye.  It meant so much more than just her ability to wave, although that’s a huge accomplishment for a child with low muscle tone and no control in her hands. But, if she learned how to wave when saying hello and goodbye it meant she understood and was not withdrawn from us, at least that’s what it meant for me. For years I’ve cried silently. I’ve prayed to God that he would bless her with independence and the ability to learn and to be present.

Slowly over the last year Sophie began waving goodbye, it was sporadic and at her convenience but she did it. She was learning. In the last few months she began waving goodbye more consistently and yesterday was a great day.

I had some friends over and I was holding Sophie when I asked her to say hell to each of them, I did so only once and without prompting a hand wave as I usually do. She smiled and waved beautifully all on her own, it was such an important moment for her and for myself.

To anyone one else It’s just a wave, for me it was a long-awaited milestone. A ray of sunshine that lights her path. A validation that she is here, that she understands and she is her own individual. And that her physical strength continues to grow with her soul.

For me it wasn’t just a wave; for me it was the wave. The one I’ve been waiting for, for years and is finally here.  A wave, is priceless!


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